Families of patients suffering from metabolic diseases gathered in protest in front of the Food and Drugs Organization on Saturday, November 11, 2017.
Mothers of ill children protested against the organization’s failure to provide their children’s needed drugs and accused the officials of being irresponsible.
“We are 230 families whose children suffer from MPS (mucopolysaccharidosis). Our children need enzymatic drugs in the absence of which, they will have liver, lung and heart disorders. We have been following up (these drugs) for a year but they have not yet given us any drugs,” a woman said.
Another mother said, “The drug has been imported and stacked them up in their storehouse, while my child has not received any medication for two months. The Food and Drugs Organization has not approved distribution of the drug.”